For quite some time, I have believed that patients with one mutation for Cystic Fibrosis can have similar symptoms; therefore, should receive the same treatment and prevention. Dr. B (our ENT) confirmed that there is a possibility and was the one that helped us in our journey. However, it took some serious convincing and tears (yes, I broke and begged for help) to get him seen at the CF Clinic. Words cannot explain the gratitude I feel for Dr. G and the staff that has got us to where we are today.
We now have the high frequency vest, PEP device, Aerobika, and use saline as his nebulizer treatment. All non-invasive, nonprescription treatments that are helpful in keeping our son out of the hospital.
We’ve already met a few children that have been told that CF is not the cause of their symptoms, yet have multiple symptoms. I’d like to add many more to help doctors realize that this could be the case. I added parents and grandparents, as CF genes are genetic. Please excuse the chart. I’ll learn how to export later.
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